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<loc>https://www.powerfulpatient.org/post/empowering-patients-resources-for-complex-conditions</loc>
<lastmod>2026-02-23</lastmod>
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<image:title>A healthcare professional explaining treatment options to a patient in a consultation room.</image:title>
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<loc>https://www.powerfulpatient.org/post/bruising-bleeding-lightheaded-standing-up-heart-racing-consider-pots</loc>
<lastmod>2021-08-11</lastmod>
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<image:title>Joyce and Robin have a conversation with Dr. Blair Grubb</image:title>
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<loc>https://www.powerfulpatient.org/post/breathing-problems-consider-subglottic-stenosis-sgs</loc>
<lastmod>2026-04-26</lastmod>
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<image:title>Joyce has a conversation with Catherine Anderson</image:title>
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<loc>https://www.powerfulpatient.org/post/vhl-alliance-then-and-now</loc>
<lastmod>2021-09-22</lastmod>
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<loc>https://www.powerfulpatient.org/post/understanding-the-long-term-impact-of-post-polio-syndrome</loc>
<lastmod>2026-04-26</lastmod>
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<image:title>Polio survivor using a motorized wheelchair</image:title>
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<loc>https://www.powerfulpatient.org/post/understanding-and-managing-post-polio-syndrome</loc>
<lastmod>2026-02-24</lastmod>
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<image:title>Joyce has a conversation with Ina Pinckney</image:title>
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<loc>https://www.powerfulpatient.org/post/talking-with-joyce-graff</loc>
<lastmod>2026-02-24</lastmod>
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<image:title>Joyce Graff and Harvey Bravman</image:title>
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<loc>https://www.powerfulpatient.org/post/navigating-rare-diseases-a-caregiver-s-guide</loc>
<lastmod>2026-02-23</lastmod>
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<image:title>A caregiver reviewing important medical documents for a patient with a rare disease.</image:title>
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<loc>https://www.powerfulpatient.org/post/international-kidney-cancer-coalition-ikcc</loc>
<lastmod>2021-05-10</lastmod>
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<image:title>Joyce, Mike, and Robin have a conversation with Marta Szulc of IKCC</image:title>
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<loc>https://www.powerfulpatient.org/post/building-community-support-for-rare-disease-families</loc>
<lastmod>2026-02-23</lastmod>
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<image:title>Community gathering providing support for rare disease families.</image:title>
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<loc>https://www.powerfulpatient.org/post/health-enables-inclusion</loc>
<lastmod>2026-08-06</lastmod>
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<image:title>Dr. Sylvia Roozen</image:title>
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<loc>https://www.powerfulpatient.org/post/keeping-everyone-in-the-conversation</loc>
<lastmod>2026-04-26</lastmod>
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<image:title>photo of Caption Companion displaying a caption of the words being spoken</image:title>
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