New Hope for Batten disease

February 23, 2017



Batten Disease is one of the group of lysosomal storage diseases for which there is finally a medication to help.

Noreen Murphy, Director of Education and Support of the Batten Disease Support and Research Association (bdsra.org), joins us to discuss what Batten disease is, how it affects children, and what can be done to stop the damage is causes.

For more information, please see http://www.bdsra.org

Posted by JoyceGraff
Related Topics: Batten Disease, Empowering Yourself, Lysosomal Storage disorders, Podcast
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