Finding others with the same challenges Archive

Quilts and Health

We talk with Clare Luz, author of Quilts and Health, which explores the healing power of quilts and quiltmaking and the deep connections between art and health.

Developments in Renal Medullary Carcinoma

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

Updating the Advocacy Activities of Robin and Mike

Robin and Mike have a discussion about their current activities in healthcare advocacy, and how advocacy can be beneficial to persons dealing with personal challenges in medical conditions

Welcoming Karen Gibson

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

ALDconnect – you are not alone

Following her son’s diagnosis with X-linked adrenoleukodystrophy (ALD) Kathleen O’Sullivan-Fortin took an active role as patient advocate for her son.

Smart Patients are in touch with SmartPatients

Joyce and Robin talk with Dr. Roni Zeiger, CEO of SmartPatients, about the resources for cancer patients available through

Should I go to a Patient Support Conference?

What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks about her recent experience.

The Impact of Social Media on Healthcare

Dr. Paula Goldenberg talks with Robin and Joyce about her social media “clinic” on Facebook.

Welcome Robin Martinez

Robin MartinezMike Lawing has retired from Powerful Patient. We wish him well in his new endeavors. Mike and Joyce welcome Robin Martinez as the new co-host of Powerful Patient. Robin and Joyce talk about some of their new ideas and directions for the show and the advocacy efforts of Powerful Patient Inc.

Differences, Bullying, and Sturge-Weber Syndrome

Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition.