Managing Your Life Archive

Patients and doctors unite to cure Kidney Cancer

Dena Battle discusses how she worked to found the Kidney Cancer Research Alliance KCCure.org

New Hope for Batten disease

Batten Disease is one of the group of lysosomal storage diseases for which there is finally a medication to help.

Welcoming Karen Gibson

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

Lung Cancer and More


We speak with Dr. Ross Camidge about what people need to know about lung cancer.

Annual Report, 2016, Powerful Patient


Joyce updates everyone on what Powerful Patient has been up to throughout 2016.

Knowing Your Family Medical History

In 2004, the Surgeon General of the United States declared Thanksgiving as National Family History Day. This declaration was made to help increase awareness of FHH as an important risk factor for common chronic diseases such as cancer, heart disease, and diabetes, and to promote a reduction of the burden these diseases have on the […]

Dealing with Complex Medical Disorders


Medical conditions that cross medical specialties are particularly challenging for patients and their doctors. How to help?

Living with Multiple Myeloma


Jack Aiello has been living with multiple myeloma since 1995. Joyce and Robin talk with him about patient empowerment.

Shortening the Time to Treatment


Robin and Joyce speak with Zoe Barry of ZappRx, a secure online platform allowing patients, physicians and pharmacists to improve patients’ access to treatment.

Taking care of the Family

Airs Tue, April 29, 2016 03:00PM

In addition to the patient, it is critically important to take care of the whole family. Margie Frazier speaks with us about Batten Disease.