Getting a Diagnosis Archive

Developments in Renal Medullary Carcinoma

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

Updating the Advocacy Activities of Robin and Mike


Robin and Mike have a discussion about their current activities in healthcare advocacy, and how advocacy can be beneficial to persons dealing with personal challenges in medical conditions

Relay for Life … time to cure cancer

Just as many technologies had to grow to the point that SmartPhones are possible, so in medicine we are now at the point that a cure for cancer is possible.

Debbie Does Bethesda – a story of Oncocytoma

Debra shares her adventures with kidney cancer and oncocytoma.

Family Health History


Compiling your Family Health History can provide important clues in diagnosing conditions in yourself and others in your family.

Who is Listening to the Patient Voice?


Lesley Bennett, state coordinator for NORD in Connecticut, speaks about the role of the consumer in medical organizations.

e-Patients Live Longer


Joyce speaks with Dr. Nancy Finn about how patients benefit from doing some research, getting engaged, and advocating for him or herself.

Stephanie Sugars and the PJS Community


Mike and Joyce speak with Stephanie Sugars about Peutz-Jeghers syndrome (PJS) and the progress made in the online support group since 2000.

Optimize Your Hearing and Stay in the Conversation


Dr. Mel Miller speaks with Joyce and Mike about how to protect and optimize our hearing, and stay in the conversation.

8 Ways you can Help your Doctor Save Your Life


Joyce and Mike discuss eight tips for how to create teamwork with your doctor and help your doctor keep you well.