Getting a Diagnosis Archive

Debbie Does Bethesda – a story of Oncocytoma

Debra shares her adventures with kidney cancer and oncocytoma.

Family Health History


Compiling your Family Health History can provide important clues in diagnosing conditions in yourself and others in your family.

Who is Listening to the Patient Voice?


Lesley Bennett, state coordinator for NORD in Connecticut, speaks about the role of the consumer in medical organizations.

e-Patients Live Longer


Joyce speaks with Dr. Nancy Finn about how patients benefit from doing some research, getting engaged, and advocating for him or herself.

Stephanie Sugars and the PJS Community


Mike and Joyce speak with Stephanie Sugars about Peutz-Jeghers syndrome (PJS) and the progress made in the online support group since 2000.

Optimize Your Hearing and Stay in the Conversation


Dr. Mel Miller speaks with Joyce and Mike about how to protect and optimize our hearing, and stay in the conversation.

8 Ways you can Help your Doctor Save Your Life


Joyce and Mike discuss eight tips for how to create teamwork with your doctor and help your doctor keep you well.

Making Critical Medical Decisions


Dr. Peter Ubel proposes to train both doctors and patients to embark on better communication and “shared decision-making”.

Genetic Risk – Empower yourself by understanding your risks


Keith Julian Richards (aka Just Sayin’), a poet and Hip Hop artist from New York, shares his journey with a rare disease known as VHL, learning to manage risk.

Riding the Horse called Hope… a conversation with bill penzer

You would think that a person who had been a practicing psychologist for more than four decades would know how to cope with the diagnosis of cancer in one of his grown children. Psychologists are a source of refuge, help, and direction for many of us who suffer with all kinds of maladies and are […]