Promoting Research Archive

Developments in Renal Medullary Carcinoma

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

Patients and doctors unite to cure Kidney Cancer

Dena Battle discusses how she worked to found the Kidney Cancer Research Alliance

Welcoming Karen Gibson

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

Affordable medical technologies for the world

A unique event will take place in Boston February 27-28, 2016 … a Cancer Hack-a-thon, sponsored by the Consortium for Affordable Medical Technologies.

Oxalates, Autism and more

Susan Costen Owens realized that the gut inflammation and leaky gut in autism and other disorders would lead to increased absorption of oxalate from the diet.

Pheo Paratroopers – Patients Helping Patients

Allen Wilson of the Pheo Paratroopers joins Joyce and Mike to talk about the organization, its mission, and the recent International Conference on Pheochromocytoma and Paraganglioma.

Kidney Cancer Support Groups sharing ideas

I was honored to be part of the International Kidney Cancer Coalition (IKCC) conference last week in Amsterdam, the Netherlands.

Braeden’s Challenges

Ray Flynn, former Mayor of Boston, fights with passion for his grandson’s health and quality of life. Braeden has a rare condition that presents him and his family with significant challenges.

Celebrating Rare Disease Day

Dr. Ilene Sussman speaks with Mike and Joyce about the celebration of Rare Disease Day being co-sponsored by the VHL Alliance and MassBio on February 28, 2014.

Flu Near You

YOU can help researchers track and flu virus and improve flu prevention. Flu Near You works to save lives by tracking the virus and observing the success of vaccinations.