Advocating for Yourself Archive

Developments in Renal Medullary Carcinoma

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

Updating the Advocacy Activities of Robin and Mike

Robin and Mike have a discussion about their current activities in healthcare advocacy, and how advocacy can be beneficial to persons dealing with personal challenges in medical conditions

Involuntary Discharge from Dialysis

Patients who are disruptive or non-compliant risk being discharged from dialysis, which puts them at high risk of dying.

Welcoming Karen Gibson

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

World Congress Patient Engagement Summit

Robin and Joyce speak with Nancy Finn to recap the experience of the conference, and to speak more in depth about patient engagement in their own healthcare.

Our Diagnostic Odyssey

Joyce and Robin speak with Patricia Weltin about her difficult road to diagnosis for her daughters, and what she has learned that can help others.

Cari Cornish and Special Education Law

Joyce talks with Carin J. Cornish, an attorney specializing in Special Education Law. Cari is committed to creating the right environment for every child.

Powerful Patient meets Youth Services

Joyce Graff appeared on Talk it Out with Father Don Mowery on the radio in Memphis. They have a lot in common. It’s all about empowerment.

Hope and Resilience in the face of chronic illness

Cindy Coney is full of hope, inspiration and an unsinkable spirit that she loves using to help others affected by life challenging illness live better lives.

e-Patients Live Longer

Joyce speaks with Dr. Nancy Finn about how patients benefit from doing some research, getting engaged, and advocating for him or herself.