Managing the System Archive

Patients and doctors unite to cure Kidney Cancer

Dena Battle discusses how she worked to found the Kidney Cancer Research Alliance KCCure.org

Welcoming Karen Gibson

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

What Can We Do About Drug Prices?


Joyce and Robin speak with Abbey Meyers, founder of the National Organization for Rare Disorders (NORD), about her new book Orphan Drugs: A Global Crusade.

Shortening the Time to Treatment


Robin and Joyce speak with Zoe Barry of ZappRx, a secure online platform allowing patients, physicians and pharmacists to improve patients’ access to treatment.

Affordable medical technologies for the world


A unique event will take place in Boston February 27-28, 2016 … a Cancer Hack-a-thon, sponsored by the Consortium for Affordable Medical Technologies.

Patient Information – new info for VHL


Discussion of how the VHL Handbook helps both patients and doctors, and the power of sharing information — among patients and physicians worldwide.

Who is Listening to the Patient Voice?


Lesley Bennett, state coordinator for NORD in Connecticut, speaks about the role of the consumer in medical organizations.

Patients and Physicians Network about Kidney Cancer


The Kidney Cancer Association’s annual symposium for physicians included more patients this year, adding a rich dimension to the affair.

Why One-Third of Hospitals will Close by 2020


Despite a history of strength and stature in America, the hospital institution is in the midst of massive and disruptive change. By 2020, one in three hospitals will close.

World Congress Patient Engagement Summit


Robin and Joyce speak with Nancy Finn to recap the experience of the conference, and to speak more in depth about patient engagement in their own healthcare.