Lysosomal Storage disorders Archive

New Hope for Batten disease

Batten Disease is one of the group of lysosomal storage diseases for which there is finally a medication to help.

Helping your baby with metabolic disorders


A young mother speaks with Joyce about learning that her beautiful baby has a metabolic disorder — what that means and how to help.

Taking care of the Family

Airs Tue, April 29, 2016 03:00PM

In addition to the patient, it is critically important to take care of the whole family. Margie Frazier speaks with us about Batten Disease.