HLRCC Archive

Learning more about HLRCC

Joyce speaks with Graham Lovitt, Chairman of the HLRCC Family Alliance, moderator of the international support list for HLRCC and webmaster of http://www.hlrccinfo.org.

Radiation protection in medicine – world view

Joyce speaks about radiation in medical imaging with Dr. Madan Rehani, Director of Radiation Protection at the International Atomic Energy Agency in Vienna, Austria.

Report from Joyce’s Travels

Joyce Graff toured ten cities in September and October, speaking with audiences affected by VHL, BHD, and HLRCC. Mike Lawing interviews her about what she saw, what she did, and what she learned.

Redefining Cancer

Cheryl Gradziel, an analyst with Global Data, talks about the NCI recommendation to change the language of cancer to reduce overtreatment of early-stage tumors.

London, anyone?

Tonight I leave on the second leg of my 10-city tour. Next Saturday, September 29, I will be meeting with a group of folks in London, at Guy’s Hospital, next to Europe’s tallest building, the Shard skyscraper. I hope you will be there!! The meeting will be primarily aimed at people with VHL, HLRCC, or […]

Kidney Cancer in Brazil

Luciana Holz talks about the work of her institute on all forms of cancer in Brazil. Their work focuses primarily on helping patients navigate the medical world and the healthcare system, both public and private, in Brazil and improve their quality of life.

Mike and Joyce Advocating for You

Mike and Joyce have attended a number of conferences recently, advocating for you, and learning more. They take time to interview each other about their recent activities and share with you what they have been up to.

Riding the Horse called Hope… a conversation with bill penzer

You would think that a person who had been a practicing psychologist for more than four decades would know how to cope with the diagnosis of cancer in one of his grown children. Psychologists are a source of refuge, help, and direction for many of us who suffer with all kinds of maladies and are […]

H.B. 609 – The Cancer Treatment Fairness Act of NC

From Mike Lawing: Dear Fellow Travelers: I’m attaching some information about a bill that is working its way through the North Carolina state legislature. This bill entitled “H.B. 609 – The Cancer Treatment Fairness Act of NC” would update antiquated insurance laws to ensure that all chemotherapy, regardless of form, will be accessible and affordable […]


Robin Martinez is an administrator for three important email discussion lists for kidney cancer. Patients, survivors, caregivers, and professionals discuss current treatments and how to choose among them, side effects, clinical trials, and much more.