Brain tumor Archive

Diagnosing a Rare Disease – a Case from Ireland


Mike and Joyce talk with Gloria about her family’s adventure getting to a diagnosis of a brain tumor and a rare disease.

Passing it Forward – DIPG


Mike and Joyce speak with Louise Bunting about her experience, about DIPG, and about turning her grief and that of her family and friends into positive action, passing forward the kindness that was shown to them.

Computers, Robots, and Games to promote healing


Dr. Hermano Igo Krebs of MIT is inventing machines to assist patients with rehabilitation from brain injury – from stroke to cerebral palsy to accidents and surgery.

Riding the Horse called Hope… a conversation with bill penzer

You would think that a person who had been a practicing psychologist for more than four decades would know how to cope with the diagnosis of cancer in one of his grown children. Psychologists are a source of refuge, help, and direction for many of us who suffer with all kinds of maladies and are […]

Things As They Are: Billy’s Lesson on Acceptance

“Remember that you can’t control everything in life.  At some point you have to accept things as they are.”    Billy Foster to Paul Larson, October, 2011                                   Dear Fellow Travelers: I’m a fan of Billy Foster. Billy is many things; a husband, parent, teacher, musician, talented individual, a person of deep faith, an inspiration, and a 17 […]

Under The Radar: Distress Screening

Prologue: I seldom dwell on the fact that I am a cancer survivor. Now in my 16th year of survivorship I feel that I have grown comfortable with the fact that this type of cancer is essentially incurable, that it still has the capacity to metastasize, and the routine of follow-up CT scans and Dr. […]

Breaking the Habit

Mike talks about his own experience quitting smoking, and encourages you to do the same. At the very least, get the smoke out of your life even if you can’t kick the nicotine. There are smokeless products to help you. Getting rid of nicotine and tar significantly lowers your health risks.

Filmmaker talks about life with a rare disease


Tarek McCarthy developed his love and fascination for film at a very early age through acting and modeling. As an adult he stepped behind the camera, and was soon off to a successful career in directing and producing documentary films dealing with humanitarian and environmental issues. McCarthy talks with Joyce about his experiences living with a rare disease, and how it has shaped his character.

Archive

Shows from 2011 Support for Children whose siblings have special needs, 10-27-2011 Elizabeth Batson’s new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book offers parents insight and practical advice on how […]