Birt-Hogg-Dubé (BHD) Archive

Radiation protection in medicine – world view


Joyce speaks about radiation in medical imaging with Dr. Madan Rehani, Director of Radiation Protection at the International Atomic Energy Agency in Vienna, Austria.

Report from Joyce’s Travels


Joyce Graff toured ten cities in September and October, speaking with audiences affected by VHL, BHD, and HLRCC. Mike Lawing interviews her about what she saw, what she did, and what she learned.

Redefining Cancer


Cheryl Gradziel, an analyst with Global Data, talks about the NCI recommendation to change the language of cancer to reduce overtreatment of early-stage tumors.

London, anyone?

Tonight I leave on the second leg of my 10-city tour. Next Saturday, September 29, I will be meeting with a group of folks in London, at Guy’s Hospital, next to Europe’s tallest building, the Shard skyscraper. I hope you will be there!! The meeting will be primarily aimed at people with VHL, HLRCC, or […]

Kidney Cancer in Brazil


Luciana Holz talks about the work of her institute on all forms of cancer in Brazil. Their work focuses primarily on helping patients navigate the medical world and the healthcare system, both public and private, in Brazil and improve their quality of life.

Riding the Horse called Hope… a conversation with bill penzer

You would think that a person who had been a practicing psychologist for more than four decades would know how to cope with the diagnosis of cancer in one of his grown children. Psychologists are a source of refuge, help, and direction for many of us who suffer with all kinds of maladies and are […]

What is KIDNEY-ONC?


Robin Martinez is an administrator for three important email discussion lists for kidney cancer. Patients, survivors, caregivers, and professionals discuss current treatments and how to choose among them, side effects, clinical trials, and much more.

Living with BHD – Birt-Hogg-Dubé syndrome


Jean S. from Oregon joins Mike and Joyce for a conversation about Birt-Hogg-Dubé syndrome, one of several recently identified genetic causes of kidney cancer. Jean shares her story of diagnosis — how she found out the name of the condition that was plaguing her — and how she has learned to manage her health.

Archive

Shows from 2011 Support for Children whose siblings have special needs, 10-27-2011 Elizabeth Batson’s new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book offers parents insight and practical advice on how […]

It Runs in the Family: Birt-Hogg-Dubé


Cathy Sherman, Founder of the Birt-Hogg-Dubé Syndrome (BHD) Family Alliance, spoke with Joyce in 2009 about how her family learned why so many members were getting kidney cancer, and how they formed a group to support one another and find answers. Cathy passed away in 2012, but her work continues in the BHD Foundation.