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Surviving Caregiver Stress, 12 May 2008

Joyce talks with Eve (not her real name) about her experience as a caregiver through her husband’s chronic illness and death.  She then talks with Dr. Sheryl Baker about Eve’s experience, and about the changes that occur in the dynamics between the patient and the caregiver, and how we can all help the caregiver survive.

Medical Devices and Off-Label Use, 5 May 2008

Joyce Graff interviews Glen Meidl of Bioness, Inc, about their medical devices for neuron stimulation to complement physical therapy and restore function following stroke, spinal cord injury, and traumatic brain injury.  Brad Saul is trying it for multiple sclerosis.

Caregiving 4: A Heartbeat Away, 28 April 2008

Everyone is potentially a heartbeat away from becoming a patient or a caregiver. Fred Johnson shares his twenty years of experience as a caregiver for his wife.

The Parent as Advocate, 21 April 2008, rebroadcast from 25 Feb 2008

We hear how a new mother faces her baby daughter's life-threatening illness and learns show to be a powerful patient advocate for her daughter. She gains the respect of the doctors, and becomes an integral part of her daughtes health care team.

Testing Promising Cancer Therapies, 14 April 2008

Joyce talks with Vikas and Vidula Sukhatme about the economics of clinical trials, and their effort to test promising yet neglected therapies for cancer.

Conversation with Markus, 7 Apr 2008

Joyce talks with Markus Jansen van Vuuren, current chairman of VHL Family Alliance South Africa.  They talk about the health care system in South Africa and the prospectives for care for people with rare diseases, and the history of his family in SA since the early 1700's.

Our Visit to South Africa, 31 Mar 2008

Joyce speaks with Altheada Johnson about what we learned during our trip to South Africa -- the country, its evolving health care system, the wonderful people and their spirit, and our experiences with wheelchair travel.

Charles Segal and Music for Relaxation, 24 Mar 2008

Joyce speaks with Charles Segal, pianist and composer who lived most of his life in South Africa, about music as an expression of emotion, and its role in calming the spirit and speeding healing.

The Healthy Traveler, 17 Mar 2008

In preparation for our trip to South Africa, we speak with Judy Fern RN and Kevin Cahill MD to learn how to stay healthy while traveling to another country, with different health risks than we are accustomed to -- to learn how to be "streetwise" in another country.

Planning the Marriage, 10 Mar 2008

Adryenn Ashley speaks with us about love, marriage, and childbearing. Don’t just plan the wedding – more important, plan the marriage! It’s not all about romance, it’s also the biggest, most serious contract you will ever sign.

Advocating for Yourself and Others, 3 Mar 2008

We talk with Fran about her experience as Health Care Proxy for her friend Lisa. We talk with Fantastic Frank about his own compelling life story, and about his new comic book, helping children see and utilize their unique talents.

The Parent as Advocate, 25 Feb 2008

We hear how a new mother faces her baby daughter's life-threatening illness and learns show to be a powerful patient advocate for her daughter. She gains the respect of the doctors, and becomes an integral part of her daughtes health care team.

Protecting Your Job, 18 Feb 2008

When a medical crisis strikes you or someone for whom you are the advocate or caregiver, the stresses and time pressures can sometimes affect your job. We speak with Edward Matisik, an expert on labor law and Americans with disabilities, to help us know our rights, responsibilities, and protections under the law.

Long-Distance Travel, 11 Feb 2008

People with disabilities are traveling more today than ever before. Spending six and more hours in an airplane is challenging for everyone. We talk with some experts about accessible travel, exercise and hydration in an airplane, and staying comfortable and well throughout your trip.

Caregiving 3: Taking Care of Harry, 4 Feb 2008

Both the patient and the caregiver need to work on evolving the relationship as roles and responsibilities change. These two interviews focus on Attitude, Compliance, and Negotiation. We talk with June, a 90-year-old caregiver for her husband, and their son Jim, who is also actively involved in caring for his Dad.

Managing our Fear, 28 Jan 2008

One of the 8 ways you can help your doctor save your life is through managing your fears. Meet Deb Hogan and Dr. Gary Wood, who share their strategies for managing fear and dealing realistically with their medical conditions.

Caregiving 2: Dementia, 21 Jan 2008

Caring for someone with dementia is particularly hard. We speak with Mary Daley about caring for her husband with Alzheimer's. Later, in response to a listener question, we speak with Rod Brouhard about the challenge of conveying the essential medical facts to emergency workers.

Caregiving 1: Caring for Aging Parents, 14 Jan 2008

We begin a series of shows focusing on caregiving. Caregiving defined. Interviews with Nancy Nitikman and Margaret Smith about their roles as caregivers for their aging parents.

The Challenge of Diagnosis, 7 Jan 2008 (rebroadcast from 13 Nov 2007)

We begin a series of shows focusing on caregiving. Caregiving defined. Interviews with Nancy Nitikman and Margaret Smith about their roles as caregivers for their aging parents.

Becoming a Powerful Patient, 31 Dec 2007 (rebroadcast from 6 Nov 2007)

An interview with Joyce Graff, sharing the life experiences that have helped her develop the concept of the Powerful Patient, and the Eight Ways you can Help Your Doctor Save Your Life.

Patients Promoting Research, 24 Dec 2007

An interview with Lee Ducat, Founder and first President of the Juvenile Diabetes Foundation (1970), and Founder and President (since 1980) of the National Disease Research Interchange. Mother of a child with juvenile diabetes, she has applied her skills as a leader and innovator to raising awareness of Juvenile Diabetes, raising money, organizing family support, assembling guidelines for managing one's health, and funding research. Hear how one mother has changed the world.

The Gift of Imperfection: Special Needs Children, 17 Dec 2007

Holidays are a time of sharing those holiday letters, heavily laden with bragging points about achievements, travel, and of course perfect children. But what if your children are imperfect? Three mothers celebrate the imperfection of their children and talk about bringing up children with mental or developmental handicaps. See http://powerfulpatient.org/ (http://powerfulpatient.org/) for the Program Guide for this show.

The Perfect Gift: Kidney Transplant, 11 Dec 2007

Edbassmaster, comedy star of YouTube, donated a kidney to his sister Maureen. Giggles and laughs with Ed and Maureen, as we learn how their family deals with a serious illness that runs in the family.

Understanding Your Genetic Risks, 3 Dec 2007

We speak with Keith Richards and his mother about his brain tumor surgery, and how they manage the risks of tumors in their family.

Diagnosis: Understanding the Challenge, 26 Nov 2007

We speak with Clenton Winford and Carol about their rocky roads to diagnosis of pheochromocytoma, each from a different genetic cause.

Dealing with Depression, 19 Nov 2007

Connie Francis and Jill S. share the powerful stories of the traumatic events that unleashed bipolar disorder, and how they have learned to control it.

The Challenge of Diagnosis, 13 Nov 2007 (rebroadcast 7 Jan 2008)

We begin a series of shows focusing on caregiving. Caregiving defined. Interviews with Nancy Nitikman and Margaret Smith about their roles as caregivers for their aging parents.

Becoming a Powerful Patient, 6 Nov 2007 (rebroadcast 31 Dec 2008)

An interview with Joyce Graff, sharing the life experiences that have helped her develop the concept of the Powerful Patient, and the Eight Ways you can Help Your Doctor Save Your Life.