Archive for September, 2013

Next stop, Budapest!

Today I’m with friends in Dorset, and Friday I travel to Budapest to meet with leaders of VHL groups all over Europe. Many are long-time friends, and some are new friends yet to be met! With our shared interest in caring for and curing VHL, it doesn’t take long to become close. The group will […]

Redefining Cancer


Cheryl Gradziel, an analyst with Global Data, talks about the NCI recommendation to change the language of cancer to reduce overtreatment of early-stage tumors.

London, anyone?

Tonight I leave on the second leg of my 10-city tour. Next Saturday, September 29, I will be meeting with a group of folks in London, at Guy’s Hospital, next to Europe’s tallest building, the Shard skyscraper. I hope you will be there!! The meeting will be primarily aimed at people with VHL, HLRCC, or […]

Mental Health Issues of Diabetes


Lee Ducat and Dr. Arthur Rubenstein speak with Joyce and Mike about their forthoming conference, “Mental Health Issues of Diabetes,” to be held October 7 in Philadelphia.

Mobile Access to Medical Images

This mobile app promises to help doctors involve patients more closely! — a very positive symptom that doctors are WANTING to involve the patients more.

Patient Support – Taking Care of Michigan


Fran Mott is retiring after nearly 20 years of volunteer service to her neighbors with VHL throughout the state of Michigan.

Healing PTSD from Trauma


As a child Michele was dangerously ill for months. As an adult she has struggled to overcome the shock of that medical trauma and its aftermath.