Archive for June, 2013

Genetic Risk – Empower yourself by understanding your risks


Keith Julian Richards (aka Just Sayin’), a poet and Hip Hop artist from New York, shares his journey with a rare disease known as VHL, learning to manage risk.

Mike and Joyce Advocating for You


Mike and Joyce have attended a number of conferences recently, advocating for you, and learning more. They take time to interview each other about their recent activities and share with you what they have been up to.

Finding Sylvia’s Haven


Sylvia Anthony talks about overcoming childhood beatings and an abusive marriage, and learning to cope with life’s hardships to found a haven for abused women.

What is Prune Belly Syndrome?


Prune Belly Syndrome (PBS) or Eagle-Barrett syndrome is a group of birth defects including urethral malformation. We talk with four volunteers working to raise awareness of PBS.